The University of Manitoba IBD Research Registry //
When we developed the University of Manitoba IBD Epidemiology Database volunteers mailed back surveys that informed us of their willingness to participate in the University of Manitoba IBD Research Registry. The difference between the University of Manitoba IBD Epidemiology Database and the University of Manitoba IBD Research Registry is that the Database is anonymous and with it we can determine the total of Manitobans with Crohn’s disease and ulcerative colitis and identify patterns in the incidence rates of disease, in their health care utilization, and in other disease diagnoses they might have.
In the Research Registry people enrolled are known to us. They have informed us whether they are willing to have us contact them for other research studies. We enrolled volunteers for our Manitoba IBD Cohort Study and our Manitoba IBD Risk Factor Study from our Research Registry. Up until November 2019 there were approximately 7500 Manitobans registered in our Research Registry.
If anyone with a diagnosis of IBD is willing to be enrolled in our Registry and has not previously enrolled, please call Terri Jeanson at 204-787-4701. If unavailable please leave a message and your call will be returned. Collect calls accepted.